adrian_sm wrote:Why no more treatment, and the wait and see. Is it a case of the cure being worth than the symptoms?
I assume that also means it is to risky to go and a get out.
Yeah the chemo is pretty nasty and it kicked the shit out of me. The chemo alone nearly killed me in october which is why they stopped short of what they had planned to give me (and what is routine for my sort of cancer) As it is there's light damage to my lungs and possibly heart from the radio, if they have to go again it'll be even worse and could leave me with permenant disability for however long I may live. If the only way to cure it means they have to fry my lungs then so be it, but obviously if I can avoid having to drag around an oxygen cylinder for the rest of my life that's a bonus, especially at my age! Also if this first round isn't sucessful then they have to give me nastier stuff which will likely give me leukemia in 5-10 years time, and then I'll die from that. So while it's dormant they want to avoid giving me anything they don't have to. There's a chance it may go away on its own now, which would be great, and I walk away with the scars and little permanant damage that is already done. But if they pump me full of other poisons and radiation
then they could be giving me an alternate death sentence, when the first one may not have played out anyway. Oh, and they can't do surgery because it's in the lymphatic system which runs everywhere. They could chop it out but it could easily pop up anywhere else. I'd also have to have surgery much the same as open heart surgery where the ribs are cracked open, which takes 6-12 months on its own to heal from which would majorly lay me up. Financially I need to get back to work, which is another reason not to have chemo unless I have to.
I'm still far from out of the woods, the relapse rate in the next few years is high and the 5 year survival data is not very good. If I make it to the 5 year mark I can probably be confident there's many more to follow but until then I'm walking on egg shells. And by walking I mean roaring over them with fat ebike tyres at high speed
Looks like I might be around for Justin's Australian leg of the ebike world tour yet!
Now, about those custom ebike frames
I've got a mate who's a welder by trade (boiler maker I think) who's going to help me make up some frames from scratch so it's time to get designing! It'll basically be along the lines of what timma cut and shut for me, but in one neat frame. The rear shock will probably be dirt bike style (ala stealth, phasor etc) for simplicity and I'm totally happy with the ride from my fighter, so if I can replicate that in a smaller, lighter purpose built frame i'll be very pleased. The schlumpf in my fighter rocks too so I might incorporate one of those too, which does away with the need for worrying about clearance for large chain rings (for pedalling at higher speed) and also trying to source threaded bottom bracket shells (I can just use the right ID pipe cut to length) I might start a seperate thread for this though, I welcome everyone's input!
In the mean time, I'm nearly ready to assemble the chopped diamondback, the first coat of paint is on. I've got with flame red and it will have CF highlights - probably on the door that the controller sits on and near the join on the top bar (+/- switchgear in there) I'm also tossing up whether to paint the swing arm black or keep it all red.