Rest of the night after above, Tiny had some issues, mostly puking cuz of coughing too hard, then having to go thru the feeding and watering from the last 2-3 hours again each time, and I got so tired I just kept dozing until the alarm dinged each few minutes and gave her something then dozed again...sometimes she was still asleep so I just dozed instead of waking her.
At one point, I woke to find her chair empty,
whcih she'd been strapped into for suport...and her harnesses just hanging there empty, too. At first I thought it was just another nightmare (cuz I've already had more than a few about that sort of thing in a bunch of ways), but then I realized I was really awake (barely) and then I started to move to get up and then I saw her laying on the fbehind the chair watching me, just resting.
How the heck she got out of the harnesses, I cannot imagine, cuz one is ziptied to the other at the sternum, and the rear one goes around her back legs/pelvis and then around in front of those legs and tummy, and is hooked into the chair handles above, *and* had the "seat belt" thru it at it's front. Then the front one goes around her front legs, with a sternum support band, and clips together over her shoulders, with a carabiner holding that to the d-ring of the rear harness. It's pretty secure, and I can lift her bodily wiht it (momentarily; can't carry her cuz my knees/etc).
Anyway, she did get out of it, and it must've taken quite the effort I'm surprised didnt' wake me (but I'm exhausted, running on caffieenated soda and the need to be her for and with her). I couldn't imagine how she could have had the energy or ability to do that.
Then, after arranging her pillows for her so she could sleep on the bed instead, we skipped the rest of the watering/feeding I would've done cuz both of us were too tired for it (she was nodding off again even while I was moving her onto the bed). Yogi was up here too, so I dozed off for a long time holding a bit of each of them (since neither is really the snuggly sort to be held onto), awakened only by Tiny's occasional cough or movement, to find her trying to put her head down low, which is bad, and having to move her back, then both of us redozing... Then I woke to a miracle....or a dream, wasnt' sure which.
[youtube]i1Ch6hm1Bfg[/youtube]
Below is a crosspost from the wheelchair project thread, partly for the summary for those "just joining us" if any are, and partly so I don't retype it all:
Alrighty, here's a little summary for anyone that hasn't read the other thread stuff, for which I don't blame them; it's huge. :/
In about 4 days, from early last week, she went from being a little under the weather cuz she had an occasional cough to coughing enough to need a vet, finding out that she had light (walking) pneumonia and getting treatment for that, and in the xray process of that finding out she had MegaEsophagus, which can be dealt with relatively easily, with some care in feeding and giving water.
Then, the night of the vet visit, but afterward, she began to get so weak she would fall if she tried to run. Then she couldn't get up wihtout help, and was unsteady walking. Then she couldn't even try to do that. It looked really bad. So we setup another vet visit...they did some more tests, saw her pneumonia was gone already, so not that. They didn't yet have the test results back from the visit a few days prior, so they could only say that it was more than possible that she had the Myasthenia Gravis that the test was for.
A bunch of traumatic stuff (to me) later, the test came back positive and meds were delivered. Gave her some right away, then later that night, and didn't see any change yet, but not surprising. That's where this post starts up top.
Woke up after a doze this morning to find her standing near the foot of the bed, when just before I dozed off she'd been on her stack of pillows (to hold her head and front end higher than her back end so stuff runs down toward her tummy and stays there). It felt like a miracle, or a dream.
View attachment 9
She then walked off, on her own, whiel I hurried to get up (hard to do quickly) and follow her, in case she fell. She was wobbly (whcih considering she's eaten and kept down maybe an average of 1/20th of what she would normally have, for several days, and maybe 1/8 the water, is not surprising), but she made it to the back room and sat there instead of going out the back door cuz Yogi was in the way staring at her like "WTF is this? Aren't you supposed to be in bed?"
After I got him to go out, she got up and followed, unsteadily, then plopped down for a rest on the back porch.
I was still in a kind of euphoric shock, becuase I did not expect anything like this, and it gave me a hope that might not be real.
After a while of resting there, she insisted on getting up on her own, so she could do her potty patrol, where she checks stuff out and picks which spot to do her thing in today (it's almost never the same twice in a row). At some point in there I had to hold onto her harnesses (one front and one back) cuz she was unstable, but she still insisted on walking around and finishing her business before she'd go back inside (and it was getting warm out there, mid 90sF in the sun and low 80sF in the shade, still early morning, not much after 8am).
Then she was all done and needed to lay donw for a while, and we did, under a tree, then moved to the porch for a long while, where we did meds,
View attachment 7
then came in and camped out on the couch with her butt on the spot where the cushion goes but not with it there, so it is lower, and then her frnt paws over the arm of the couch and head on a pillow on them. Keeps her as upright as she gets without holding her in place (which doesn't work well), and she'll stay there, mostly, for a long time. So then we did water, and a little bit of food.
Since we went back to that off and on throughout the day, we tried a few positions and supports, eventually finding one that gets "the sigh", and a few that almost induced the pukies (like the one where she's laying opposite direction away from teh couch arm).
View attachment 3
Unfortunatley one side effect of the MG meds is diarrhea, and she got the squirmies for that so we had to go outside, whcih we did in the wheelchair I made for her a few days ago, so she can walk herself but can't fall over and if all else fails I can wheel her around.. It was a lot hotter so she wore out way faster, and we didnt' do a tour, just in the shaded area near the house except one little jaunt she insisted on before she would go potty.
Then she HAD to get water from the lixit faucet waterer setup for her above her head height, and I had to keep stopping her from drinking too much at a time. (needs a timer on it so it shuts off after so many seconds, then won't reactivate for several minutes). I know she's terribly thirsty, but if she gets her fill she'll choke on it before it gets into her stomach, cuz of the ME. So it has to come in very small amounts, like an ice cube amount, with up to 3-5 minutes before the next one. If she coughs, its all on hold for a while, or she'll puke everthing back up from now to a while ago. Sometimes taht happens anyway.
Which leads back to the only problem she really has right this minute: if she can't stop coughing, which is quite possibly from aspiration of liquid, mostly drool or water, (or food), she won't be able to keep down enough water or food to survive.
At that point, it's a question of what to do...keep trying what I'm doing, or more "heroic" stuff like IV fluids and feeding tubes, till she's "better" and can eat and drink on her own without that problem (which may never happen cuz of the ME), or...well, I'm sure y'all can figure out what lots of poeple tell me I should do.
But Tiny saved MY life at least twice, probably several times, just by being herself, and I owe her a debt I can't imagine not at least TRYING to repay.
Already she can walk around and do nearly-normal stuff.
If she was eating and drinking normal amounts, she'd be very nearly back to normal activities and life, other than not slurping up all the water and food she thinks she needs.
(and having to sit up straight as possible for at least 10-15 minutes after drinking or eating so it gets to her tummy).
All we need is a way to get her water and food into her without coughing enough to puke it all back up, preferably without it literally taking 24 hours a day to do it, but I'd be ok with that if I could get money for rent/etc some other way than a dayjob, so I could stay right there with her for it. (though if she didn't puke it back up it wouldn't take that long anyway, cuz she wouldn't need to redo more than half of her feedings/waterings)
We already have a message into the vets and the rescue to find out if there are any "doggie cough suppressants" she could take along with her other meds, but I haven't heard back yet.
Oh, and a coworker brought over a blender and I made some "dog food smoothie" for her, blend of the kibble she likes best out of what I have, and some peas and barley and chicken for extra flavor so she'd eat it for sure. It looks more like what's coming out hte other end right now with the MG meds, but at least it doesn't smell like that.
She ate it right up, several spoonfuls before she decided she was done with eating, one every few minutes for a short while.
Mostly today I've had her up on that couch while I worked on improvements to the chair, and cleaning and washing stuff that's gotten soiled in various ways over the last week, in between feeding or watering her or just sitting with her. She did get up and come over or just go outside on her own several times, so I had to always keep an eye on her and could not leave the room for even a whole minute at a time without worrying she'd go adventuring and fail to be able to keep going.
There were qutie a few little poopy adventures cuz of the diarrhea, which is good in that it means she had the stuff in her to poop out, but bad in that it takes too much water and stuff with it, and in that the adventures used up a lot of her energy and got her heated up a lot even in the shade.
More videos (I only got a few adventures, most I was just worried about her and accompanying her, trying to make sure she'd actually poopy while in the chair, which she did as you'll see
):
[youtube]2Ta_AWm8W6Y[/youtube]
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[youtube]5C-t244pB3s[/youtube]